From: Impact of refractory and unexplained chronic cough on disease burden: a qualitative study
Type of burden | Descriptive quote |
---|---|
Impact on motion and body movement | Driving is scary. If I cough when I’m holding the wheel, I can’t see ahead. I don’t drive much now |
It’s a problem when there are people around me such as when I am on the train. People would think I have COVID-19 nowadays, or a cold during the pre-COVID era. In such cases, I would endure it or hold my mouth tightly and try to keep the sound as low as possible | |
I started to wheeze just by going up the stairs at the station. It’s hard to walk in the station because I feel like I’m walking fast to keep up with the crowd. Going up and down the stairs is a big burden for me | |
Coughing can cause a loss of concentration, momentary difficulty in breathing, or pain in my lungs | |
Impact on concentration and behavior | When I stop what I’m doing because of coughing, I get some rest. But I feel like that resets my thinking |
Impact on emotion | Asthma makes me feel like I have lost. I’ve lost in life |
I am thinking why I got to this stage, it’s annoying, and I’m always worried about going out, and about what I would do if I couldn’t stop coughing again when I’m on a train or plane | |
Impact on sleeping and Meals | Recently, when I go to bed or wake up in the morning, I have a cough, so I get my inhaler and use it to stop my cough |
When I’m in bed and have a cough, I try to move to a place where I can be alone | |
I get sleepy the next day. When it’s bad, I take a nap the afternoon of the next day | |
Spicy food. Because it induces (my cough). When I start coughing due to the spiciness, I end up with an asthmatic cough, so I eat less spicy food (nowadays) | |
Sometimes I choke while I’m eating, and choke when I am drinking, and cough even more. Frankly speaking, I am annoyed when it comes to food | |
Impact on work and housework | Coughing often interrupts my work |
It becomes a nuisance to work. I feel like I don’t want to work anymore | |
Regarding cars, cough doesn’t generally restrict me on the job, but it does prevent me from working outside of the office. This stopped me from pursuing my career plan | |
I have left early several times, but I never take an entire day off. I have to leave early because I have a bad cough, or I have to go to the hospital… only by about 30 min to an hour | |
I’m taking a leave of absence on company orders. When it began, I was suffering from the same difficulty in breathing, my daily activities were limited, and I had trouble conversing | |
Laundry usually requires vertical motion of the body. Lifting up clothing to dry them. It was so hard that I had to ask someone else to do it | |
Sometimes I can’t go shopping or cook if it’s too bad | |
Impact on family, friends, and communications | My boss would sometimes say, ‘You have to get well’ or ‘coughing is annoying for others.’ |
People often ask, ‘Are you okay?’ but obviously I’m not all right at all | |
Both my parents and wife know about it (my cough), so it doesn’t affect us much | |
I feel sorry for making others wait when I physically can’t speak | |
Impact on hobbies and leisure | I sing in opera, so I’m basically finished if I cough. I usually don’t cough while performing due to nervousness, but I have difficulty controlling my breathing during practice. However, I don’t cough fully. I increase my inhalant beforehand |
Impact on economic burden and burden on hospital visit | The medicine is expensive. I take a lot of it. It has become an economic burden |
(The hospital) is within walking distance…so, I don’t feel much burden because of having to visit the hospital | |
Traveling is a burden, as the hospital is far away; it costs more than 1000 yen for each trip, in addition to the medication cost it costs more than 6000–7000 yen per month | |
Money isn’t a burden for me because I don’t go to doctors that I have to wait for. Time is more of a burden | |
Symptoms and treatment of cough | A dry cough. It troubles me almost every day |
When I start coughing, it’s a cough that makes a rattling sound inside me, unlike a normal cough | |
I also have hay fever, I don’t know if that’s the reason, but I always sneeze when I cough and feel a little unwell in early spring | |
At the turn of the season, I feel so sluggish that I just want to sit down | |
When I get up in the morning. I feel like phlegm is stuck in my throat, which is the worst feeling | |
I have a long continual cough in the middle of the night or in the morning. During the day, it repeatedly comes and goes | |
My current medication is fine. I strongly feel the side effects of taking new treatments, so I wonder… | |
I don’t want to take any medicine if possible. Medicines are not natural, so I feel like they are not good for me | |
I’ve had times before when I was introduced to new medication or told that I need to change my medication, so I have no hesitation to do so | |
I would like to try (new medication). If I was asked to be a human guinea pig for a clinical trial, I would |